About the SHN

About the Swiss Hemo­phil­ia Net­work (SHN)

His­to­ry of the SHN:

The treat­ment of bleed­ing disorders has devel­oped enor­mous­ly in med­ical and phar­ma­co­log­i­cal terms over the last decades and years. Nev­er­the­less, peo­ple with bleed­ing disorders and their physi­cians have been con­front­ed with major chal­lenges in recent years. Experts agreed that com­pre­hen­sive somat­ic, psy­cho­log­i­cal and social care should be one of the cor­ner­stones of mod­ern treat­ment. How­ev­er, the imple­men­ta­tion of such a com­pre­hen­sive care and treat­ment con­cept required an exces­sive­ly high degree of flex­i­bil­i­ty and will­ing­ness to com­mu­ni­cate in order to coor­di­nate appro­pri­ate mea­sures for the ben­e­fit of the patients.

This sit­u­a­tion called for a new umbrel­la orga­ni­za­tion, which was defined as the Swiss Hemo­phil­ia Net­work in April 2014 from the (long-stand­ing) Med­ical Com­mis­sion (AeK) of the patient orga­ni­za­tion SHA (Swiss Hemo­phil­ia Asso­ci­a­tion), in its cur­rent form.

The cre­ation of this orga­ni­za­tion was a pio­neer­ing task in Switzer­land. The SHN was the first asso­ci­a­tion to form a net­work of med­ical, nurs­ing, phys­io­ther­a­py and oth­er rel­e­vant pro­fes­sion­al groups in order to use inter­dis­ci­pli­nary coop­er­a­tion as an impor­tant basis for com­pre­hen­sive treat­ment of this patient group.

Orga­ni­za­tion:

The focus of the new orga­ni­za­tion was on the logis­ti­cal and lin­guis­tic con­di­tions of peo­ple with bleed­ing disorders and their rel­a­tives. The SHN there­fore cre­at­ed an orga­ni­za­tion­al divi­sion of the var­i­ous hemo­phil­ia centers into geo­graph­i­cal units of the south­east­ern, west­ern or cen­tral­ly locat­ed centers in Switzer­land.

This is how the present orga­ni­za­tion­al units were cre­at­ed:

Aim of the SHN:

The aim of the Swiss Haemophil­ia Net­work is to offer opti­mal and com­pre­hen­sive treat­ment to adults and chil­dren with con­gen­i­tal and acquired bleed­ing disorders in Switzer­land.

These are our mea­sures:

Bylaws:

Please click to down­load: Bylaws

Organs:

As a reg­is­tered asso­ci­a­tion, the Swiss Haemophil­ia Net­work has the fol­low­ing organs: the board of direc­tors, the gen­er­al meet­ing, the audi­tors and per­ma­nent com­mis­sions or work­ing groups.

The Board con­sists of the Pre­sid­i­um and two mem­bers each (one from adult med­i­cine and one from pedi­atrics) from the fol­low­ing geo­graph­i­cal units:

– Mid­dle (Hemo­phil­ia Centers Aarau, Basel, Bern, Lucerne)

– South­east Switzer­land (Hemo­phil­ia Centers Chur, St. Gallen, Bellinzona, Zurich)

– Westschweiz (Hemo­phil­ia Centers Gene­va, Lau­sanne, Sion).

Mem­bers of the SHN:

Full mem­bers:

Experts who are active­ly involved in the treat­ment of patients with hemo­phil­ia or oth­er con­gen­i­tal or acquired bleed­ing ten­den­cies in Switzer­land can be admit­ted as full mem­bers.

Hon­orary mem­bers:

Per­son­al­i­ties who have ren­dered out­stand­ing ser­vices in the field of hemo­phil­ia and to the SHN may be appoint­ed hon­orary mem­bers. They have no vot­ing rights.

Become a mem­ber:

The net­work is open to all pro­fes­sion­al groups, which are direct­ly and active­ly involved in the treat­ment of peo­ple with bleed­ing ten­den­cies. A mem­ber­ship costs an annu­al fee of 100, — CHF for Hema­tol­o­gists and Physi­cian and 50,- CHF for Nurs­es, Phys­io­ther­a­pists and oth­ers.

Click here for the reg­is­tra­tion form. 

Board: