Affect­ed per­sons, par­ents, rel­a­tives and care­givers may be faced with a vari­ety of ques­tions and prob­lems. Peo­ple with rare dis­eases, which include the bleed­ing-disorders, there­fore seek infor­ma­tion. Sound knowl­edge is essen­tial for opti­mal self-man­age­ment and deci­sion-mak­ing.

On the one hand, knowl­edge can be acquired through the med­ical and ther­a­peu­tic staff of the SHN. On the oth­er hand, the patient organ­i­sa­tion “Swiss Hemo­phil­ia Asso­ci­a­tion (SHA)” also rep­re­sents an impor­tant exchange and infor­ma­tion platform. The SHG is com­mit­ted to the needs of those affect­ed, organ­is­es var­i­ous events and offers com­pre­hen­sive ser­vices.

The mem­bers of the Swiss Hemo­phil­ia Soci­ety are not mem­bers of the Swiss Haemophil­ia Net­work, but they are in con­stant exchange. Var­i­ous events are organ­ised joint­ly every year.

The fol­low­ing link will take you to the infor­ma­tion platform of the “Swiss Haemophil­ia Asso­ci­a­tion — SHA”.